Commission on COVID-19, Disablism and Systemic Racism – Call for Views and Experiences

We are calling on Disabled people and people with long-term health conditions from Black, Asian and minoritised ethnic groups* to share their views and experiences of the COVID-19 pandemic as part of our Commission on COVID-19, Disablism and Systemic Racism

We’re also keen to hear from their families, carers and people who work in social care.  

The evidence gathered will help us to hold the UK government to account over failings during the pandemic, and build solutions for transformative and sustainable change in health and social care. 

We know that Disabled people, as well as people from Black, Asian, and minoritised ethnic groups, experienced disproportionate levels of harm during the pandemic. This was both in terms of risk of infection, illness and death from COVID-19 but also because of the wider impact of COVID-19 on socioeconomic and health inequalities that already existed for these groups of people. 

But what was the impact on Black, Asian and minoritised ethnic Disabled people?  

Taking adult social care as our primary focus, we want to explore this intersection and learn more about COVID-19, disablism, and systemic racism and identify solutions that directly tackle the long-standing inequalities and discrimination faced by Disabled people from Black, Asian and minoritised ethnic groups. 

The deadline for submissions is 5pm on Friday 30 September.

*Please see here for a note on language and definitions.

We are asking people to share their experiences of the impact of government measures and policies designed to control the spread of the virus and mitigate the wider impacts of the pandemic.  

We also want to hear your views on what should have been done differently and what needs to change to tackle inequality and discrimination and prevent further harm for Disabled people from Black, Asian and minoritised ethnic groups.

How to contribute 

There are different ways you can respond to our Call for Views and Experiences.

  • Use our online survey, (Easy Read version also available),
  • Email us a video or audio file,
  • Email us a Word document,
  • Download one of the printable PDFs, complete and email it to us, (Easy Read version also available),
  • Send us a text or WhatsApp message,
  • Email us your response in the body of an email.

If you would like to send us a text or WhatsApp message, please email us in the first instance for the phone number.
For any questions about this survey or if you require it in a different language or format, please email us.  

Email: [email protected] 

In your response, we are keen to hear:

  • How you were affected by the COVID-19 pandemic and government’s pandemic response, including any additional challenges or harm you experienced as Disabled person or person living with a long-term health condition from a Black, Asian or minoritised ethnic group.
    For example, the impact of government-imposed rules and restrictions, public messaging, changes to social care support and other services, access to health care and treatment.

  • The key changes to the pandemic response that would have improved your experience.
    For example, what should the government have done differently? The NHS? Charities? The general public?

  • Any thoughts or ideas about how this Commission should drive change and tackle inequality and discrimination.

Within your response, please be clear whether you are a Disabled person, a family or unpaid carer of a Disabled person, or whether you are a member of the adult social care workforce. If you also tell us about your disability or health condition and your ethnicity that will help us to better understand people’s responses.

If you are responding as a family member, carer or member of the adult social care workforce, please consider the experience of your family / people you support in your response.

If you would like to submit a collective response, please email us and include a note on how you have gathered people’s views to build your response. 

The deadline for submissions is 5pm on Friday 30 September.

*Please note that unless you choose to be identifiable, your responses will remain anonymous and analysed with others to draw out common themes. We may choose to use a quote from your response, but any identifiable information will be removed. For more information on how we will use and store your information please see here